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Longer Life with vEDS: A Lesson from Marfan Syndrome

Nov 29, 2018
5 min

Longer Life with vEDS: A Lesson from Marfan Syndrome

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The 4 Essential Elements of your vEDS Care Team

Sep 7, 2018
4 min

The 4 Essential Elements of your vEDS Care Team

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How much does the "v" mean to vEDS?

Jul 2, 2018
2 min

How much does the "v" mean to vEDS?

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7 Lessons from the vEDS Facebook Community

Jun 12, 2018
5 min

7 Lessons from the vEDS Facebook Community

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FIGHT vEDS Version 2.0 Website Now Available!

May 25, 2018
2 min

FIGHT vEDS Version 2.0 Website Now Available!

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The University of Washington and FIGHT vEDS ask patients to set the research agenda

Jan 31, 2018
2 min

The University of Washington and FIGHT vEDS ask patients to set the research agenda

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Congress Attempts to Alter the Orphan Drug Tax Credit

Nov 13, 2017
3 min

Congress Attempts to Alter the Orphan Drug Tax Credit

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5 Tips from Benjamin Franklin for vascular EDS

Aug 28, 2017
4 min

5 Tips from Benjamin Franklin for vascular EDS

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Acer Therapeutics Obtains Exclusive License to Celiprolol Study Data

Dec 14, 2016
1 min

Acer Therapeutics Obtains Exclusive License to Celiprolol Study Data

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