FIGHT vEDS was founded in 2017 to:​

  1. Advance research in vascular EDS

  2. Help patients get rapid, low-cost genetic testing

  3. Bring up-to-date and easy-to-understand vEDS information to patients

Your contribution to FIGHT vEDS will help continue that mission and John DeMasi's leadership legacy in the vascular EDS community. FIGHT vEDS plans to use contributions to: 

  1. Drive future research by launching scholarships for emerging researchers to study vEDS and become more ingrained in the patient community

  2. Enhance the genetic testing program to continue providing end-to-end support from getting a test through supporting patients in developing a competent care team

  3. Expand content on and broaden awareness

We greatly appreciate your support.

We greatly appreciate your support.

If you would prefer to donate by check or have trouble donating through this secure payment page or PayPal, contact us for more information on how to contribute.


Green Ivy Health Inc. (the legal entity name for FIGHT vEDS) is a 501(c)(3) Nonprofit Corporation. Contributions are tax-deductible as permitted by law.

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