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Aytu is suspending its trial - what's next?

Aytu is suspending its trial - what's next?

Aytu is suspending its trial - what's next?

Oct 19, 20223 min read

Aytu Initiates vEDS Clinical Trial

Aytu Initiates vEDS Clinical Trial

Aytu Initiates vEDS Clinical Trial

Sep 14, 20222 min read

New Treatment? New Hope for vEDS

New Treatment? New Hope for vEDS

New Treatment? New Hope for vEDS

Jan 19, 20222 min read

2020 Review and Looking Ahead

2020 Review and Looking Ahead

2020 Review and Looking Ahead

Apr 12, 20212 min read

The FDA rejects celiprolol - how should we interpret the news?

The FDA rejects celiprolol - how should we interpret the news?

The FDA rejects celiprolol - how should we interpret the news?

Jun 29, 20193 min read

NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays

NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays

NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays

May 16, 20193 min read

Longer Life with vEDS: A Lesson from Marfan Syndrome

Longer Life with vEDS: A Lesson from Marfan Syndrome

Longer Life with vEDS: A Lesson from Marfan Syndrome

Nov 29, 20185 min read

The 4 Essential Elements of your vEDS Care Team

The 4 Essential Elements of your vEDS Care Team

The 4 Essential Elements of your vEDS Care Team

Sep 7, 20184 min read

A vEDS Confession...the 1st time I met another patient

A vEDS Confession...the 1st time I met another patient

A vEDS Confession...the 1st time I met another patient

Aug 9, 20183 min read

2018 vEDS Collaborative Meeting: What to Expect

2018 vEDS Collaborative Meeting: What to Expect

2018 vEDS Collaborative Meeting: What to Expect

Jul 23, 20183 min read

How much does the "v" mean to vEDS?

How much does the "v" mean to vEDS?

How much does the "v" mean to vEDS?

Jul 2, 20182 min read

7 Lessons from the vEDS Facebook Community

7 Lessons from the vEDS Facebook Community

7 Lessons from the vEDS Facebook Community

Jun 12, 20185 min read

FIGHT vEDS Version 2.0 Website Now Available!

FIGHT vEDS Version 2.0 Website Now Available!

FIGHT vEDS Version 2.0 Website Now Available!

May 25, 20182 min read

300+ Patients Respond to University of Washington Research Survey

300+ Patients Respond to University of Washington Research Survey

300+ Patients Respond to University of Washington Research Survey

Apr 26, 20181 min read

The University of Washington and FIGHT vEDS ask patients to set the research agenda

The University of Washington and FIGHT vEDS ask patients to set the research agenda

The University of Washington and FIGHT vEDS ask patients to set the research agenda

Jan 31, 20182 min read

Congress Attempts to Alter the Orphan Drug Tax Credit

Congress Attempts to Alter the Orphan Drug Tax Credit

Congress Attempts to Alter the Orphan Drug Tax Credit

Nov 13, 20173 min read

5 Tips from Benjamin Franklin for vascular EDS

5 Tips from Benjamin Franklin for vascular EDS

5 Tips from Benjamin Franklin for vascular EDS

Aug 28, 20174 min read

Acer Therapeutics Obtains Exclusive License to Celiprolol Study Data

Acer Therapeutics Obtains Exclusive License to Celiprolol Study Data

Acer Therapeutics Obtains Exclusive License to Celiprolol Study Data

Dec 14, 20161 min read

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