WE HELP PATIENTS
FIGHT vEDS
FIGHT vEDS is a non-profit organization dedicated to fighting and finding a treatment for vascular Ehlers-Danlos Syndrome.
ADVANCING THE FIRST FDA-APPROVED vEDS TREATMENT
FIGHT vEDS is working to give patients the opportunity to participate in the first placebo-controlled trial for a vascular Ehlers-Danlos Syndrome treatment.
…about clinical trial options
…to verify your diagnosis and confirm eligibility for clinical trials
…in trials when they launch (expected 2022)
GENETIC
TESTING
We help connect patients with fast, low-cost genetic testing options
Patients Assisted with Genetic Testing
RESEARCH
We work with academic institutions and pharmaceutical companies to advance research to find a treatment for vascular Ehlers-Danlos Syndrome
ongoing initiatives
researching vEDS treatments
40K
Endangered Species
800
Volunteers
140
Conservation Programs
1
Earth for Us to Protect
We bring up-to-date information about vascular Ehlers-Danlos Syndrome and its treatment to patients and caregivers around the world
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