WE HELP PATIENTS
FIGHT vEDS
FIGHT vEDS is a non-profit organization dedicated to fighting and finding a treatment for vascular Ehlers-Danlos Syndrome.
ADVANCING THE FIRST FDA-APPROVED vEDS TREATMENT
FIGHT vEDS is working to give patients the opportunity to participate in the first placebo-controlled trial for a vascular Ehlers-Danlos Syndrome treatment.
1
…about clinical trial options
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…to verify your diagnosis and confirm eligibility for clinical trials
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…in trials when they launch (as soon as 2021 or early 2022)
GENETIC
TESTING
We help connect patients with fast, low-cost genetic testing options
RESEARCH
We work with academic institutions and pharmaceutical companies to advance research to find a treatment for vascular Ehlers-Danlos Syndrome
ongoing initiatives
researching vEDS treatments
40K
Endangered Species
800
Volunteers
140
Conservation Programs
1
Earth for Us to Protect
We bring up to date information about vascular Ehlers-Danlos Syndrome and its treatment to patients and caregivers around the world
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