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WE HELP PATIENTS
FIGHT vEDS

FIGHT vEDS is a non-profit organization dedicated to fighting and finding a treatment for vascular Ehlers-Danlos Syndrome.

White Brick Wall

ADVANCING THE FIRST FDA-APPROVED vEDS TREATMENT

FIGHT vEDS is working to give patients the opportunity to participate in the first placebo-controlled trial for a vascular Ehlers-Danlos Syndrome treatment.

LEARN

…about clinical trial options

TEST

…to verify your diagnosis and confirm eligibility for clinical trials

ENROLL

…in trials when they launch (expected 2022)

Pipetting Samples and Test Tube

GENETIC

TESTING

We help connect patients with fast, low-cost genetic testing options

1,000+

Patients Assisted with Genetic Testing

RESEARCH

We work with academic institutions and pharmaceutical companies to advance research to find a treatment for vascular Ehlers-Danlos Syndrome

ongoing initiatives

researching vEDS treatments

2
Science Lab

40K

Endangered Species

800

Volunteers

140

Conservation Programs

1

Earth for Us to Protect

EDUCATION

We bring up-to-date information about vascular Ehlers-Danlos Syndrome and its treatment to patients and caregivers around the world

20,000+

Visitors Educated

From Countries

60+
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