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WE HELP PATIENTS
FIGHT vEDS

FIGHT vEDS is a non-profit organization dedicated to fighting and finding a treatment for vascular Ehlers-Danlos Syndrome.

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ADVANCING THE FIRST FDA-APPROVED vEDS TREATMENT

FIGHT vEDS is working to give patients the opportunity to participate in the first placebo-controlled trial for a vascular Ehlers-Danlos Syndrome treatment.

1

LEARN

…about clinical trial options

2

TEST

…to verify your diagnosis and confirm eligibility for clinical trials

3

ENROLL

…in trials when they launch (as soon as 2021 or early 2022)

Pipetting Samples and Test Tube

GENETIC

TESTING

We help connect patients with fast, low-cost genetic testing options

Patients Assisted with Genetic Testing

900
Science Lab

RESEARCH

We work with academic institutions and pharmaceutical companies to advance research to find a treatment for vascular Ehlers-Danlos Syndrome

ongoing initiatives

researching vEDS treatments

40K

Endangered Species

800

Volunteers

140

Conservation Programs

1

Earth for Us to Protect

EDUCATION

We bring up to date information about vascular Ehlers-Danlos Syndrome and its treatment to patients and caregivers around the world

Visitors Educated

18,000

From Countries

60+
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