FIGHT vEDS is here to help you get tested for vascular EDS and related conditions in the fastest and most affordable way available - typically under 5 weeks and under $450. We just launched a program to make genetic testing easy.
FIGHT vEDS will help you with:
VEDS TESTING PROCESS: Get tested for vEDS (including 30 genes for related conditions) by a leading genetics lab through an easy saliva sample you mail from home
INSURANCE: Understand affordable insurance options as low as $50 and self-pay options as low as $450
GENETICS EXPERTISE: Discuss results with a genetic counselor trained in vEDS
CARE TEAM: For those diagnosed with vEDS, FIGHT vEDS will support you in building an expert Medical Care Team
Although vascular Ehlers-Danlos is a serious disease, the outcomes and life expectancy can be greatly improved with proper awareness, treatment, and management.
We are accepting a limited number of patients into our pilot program. If you're interested in participating, click below to get more information:
Frequently asked questions
What is FIGHT vEDS?
What is the FIGHT vEDS genetic testing program?
Launched in 2018, the genetic testing program is a patient support program to help make testing simple and easy. The program helps you understand testing options and connects you with testing labs.
Why did FIGHT vEDS launch the program?
FIGHT vEDS is a leading vascular Ehlers-Danlos information source. Our website gets thousands of visits each month, but we realized we had no information for one of the most commonly asked questions we heard - "Do I have vascular EDS?". In 2018, we realized we needed to help our visitors answer this important question.
Why should I get tested?
Vascular Ehlers-Danlos is a rare diease and most people will test negative. However, for those who test positive, there have been advancements in vascular EDS treatments and management that can greatly improve outcomes. The first step is taking control of your healthcare so that your doctors and insurance will give you access to those treatments.
Can FIGHT vEDS make testing cheaper?
Yes! FIGHT vEDS is working with leading testing labs to lower the cost of vEDS diagnosis. We currently have discounts available for people who have a direct relative with confirmed vEDS, bringing the total testing cost to $50.
What are some of the common problems with the "old way" of testing?
Getting tested has been one of the most difficult challenges for vEDS patients. The common problems we hear include: