vEDS RESEARCH

STUDIES 

The studies and trials conducted in vascular EDS

Learn More About the University of Washington vEDS Study

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The University of Washington is enrolling patients in a longitudinal study of vascular EDS patients.  Through it, they hope to learn more about vEDS as a condition, improve treatments and outcomes.

Donate to the UW Patient Registry

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The UW vEDS Patient Registry is supported by donations from vEDS patients and organizations.  Follow this link to learn more about donating to the cause.