Upcoming Events

Never miss another event! If you know of upcoming events not listed, please contact us so we may add them

Ehlers-Danlos Society's Rarer Types Day

August 05, 2018

Join the EDS community for the Ehlers-Danlos Society's special one-day event aiming to empower those living with the rarer types of EDS and build connections to last a lifetime.

Driving for DEFY Golf Outing 2018

July 14, 2018

The 4th annual DEFY Foundation Golf Outing is taking place July 14th in Comstock Park, Michigan.  Head over to their website to learn more and help support the cause!

2nd International Vascular EDS Conferance

May 02, 2018

In May 2018 the 2nd international meeting of the leading experts in vascular EDS took place in Amsterdam, Netherlands.  Leading vEDS experts from the United States, France, Belgium and more were in attendance to discuss where we stand and what the next steps in research need to be. The DEFY Foundation has spearheaded this effort and its funding.  We are all thankful for their efforts and will add any research updates to our website when they become available

Texas vEDS Families mini-conference

April 14, 2018

Ryan's Challenge will be hosting a mini-conference for vascular EDS patients and their families.  To learn more please follow the link below to their website!

Annabelle's Challenge Lunch with Santa Party

December 17, 2017

From our friends in the United Kingdom, Annabelle's Challenge will be hosting a lunch with Santa party to help raise money for vEDS.  Click the link below to learn more!

Ryan's Challenge Birthday Bash 5k

November 18, 2017

Ryan's Challenge is hosting a virtual 5k fun dash in Bryan, Texas on November 18th, 2017.  For more information click the link below to be taken to Ryan's Challenge!

3rd Annual Driving for DEFY Golf Outing

July 15, 2017

The 3rd annual golf fundraiser is being put on by the DEFY Foundation this July! For more information click the link below

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