Learn More About the University of Washington vEDS Study

The University of Washington is enrolling patients in a longitudinal study of vascular EDS patients.  Through it, they hope to learn more about vEDS as a condition, improve treatments and outcomes. 

Donate to the UW Patient Registry

The UW vEDS Patient Registry is supported by donations from vEDS patients and organizations.  Follow this link to learn more about donating to the cause.