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The FDA rejects celiprolol - how should we interpret the news?

Jun 29, 20193 min read

The FDA rejects celiprolol - how should we interpret the news?

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NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays

May 16, 20193 min read

NEW STUDY: vEDS patients are living longer, but unclear what role celiprolol plays

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Longer Life with vEDS: A Lesson from Marfan Syndrome

Nov 29, 20185 min read

Longer Life with vEDS: A Lesson from Marfan Syndrome

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The 4 Essential Elements of your vEDS Care Team

Sep 7, 20184 min read

The 4 Essential Elements of your vEDS Care Team

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A vEDS Confession...the 1st time I met another patient

Aug 9, 20183 min read

A vEDS Confession...the 1st time I met another patient

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7 Lessons from the vEDS Facebook Community

Jun 12, 20185 min read

7 Lessons from the vEDS Facebook Community

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FIGHT vEDS Version 2.0 Website Now Available!

May 25, 20182 min read

FIGHT vEDS Version 2.0 Website Now Available!

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