FIGHT vEDS TeamMay 16, 20193 minNEW STUDY: vEDS patients are living longer, but unclear what role celiprolol playsIn April 2019, an observational study of vascular EDS was published in the Journal of American College of Cardiology (link). The good news i
The FIGHT vEDS TeamJul 3, 20182 minHow much does the "v" mean to vEDS?What’s in a name? Those of you who visited our site this week may have noticed a “little” change. After almost a year of being known as FIGH